Top 10 Reasons it Sucks to be T1D

Top 10 Reasons it Sucks to be Type 1 Diabetic

  1. You need to be a math magician. Count carbs, give the right amount of insulin to account for carbs, try to exercise and need to figure out how much less insulin to give so you don’t go low or high if you subtract too much. Blah blah blah. I could go on, but I don’t feel like it. So there! >:P
  2. Attachment disorder. I feel abnormally attached to my pump….I guess that isn’t really abnormal, it does keep me kickin’ and not cremated in a jar somewhere. However, I do feel practically naked if it is disconnected from me for too long. I may be liable to flip out and start running into walls repeatedly until I am magically connected again.
  3. Diet Soda. Don’t get me wrong I LOVE diet soda, but when I go to restaurants it is sometimes hard to distinguish if the waiter/waitress actually gave me a diet soda. If the fountain tank contraption thing-a-ma-bobbers aren’t set up right it can have too much syrup stuff and make a diet soda not taste diet. Then I have to ask the person(s) I’m with to test it out for me, while they look at me like I’m a nut job, and 8 times out of 10 they can’t tell themselves. Then I have to ask the waiter/waitress to get me a new one to be safe and risk them spitting in my drink for being a nuisance.
  4. Sugar Free Hard Candy. Evil stuff. Tastes like death wrapped around a dirty rock dipped in a packet of Equal. Some people (teachers, mostly) have tried to be respectful and give this to me as if to say “they care” but it actually makes me think they are trying to kill me. Give me the real stuff. I have an insulin pump. I can handle it.
  5. Bloody fingers. Yuck. Also, attached to this one is holes. I poke holes in my fingers, holes in my belly. I’m just a holy gal, I guess.
  6. Eating. I like to eat, but I don’t like being forced to eat because my blood sugar is low or not being able to eat because I’m waiting to stop getting high.
  7. Tubing on the pump. My pump has tubing…I’m sure most of you have seen it hanging out of my clothes. Lord knows people like to constantly tell me it’s not tucked in. Well, sometimes it doesn’t want to be hidden. Sometimes it wants to be foot loose and fancy free.
  8. Tubing on the pump. I already said this one? Well, I have more to say. Shock, I know. Sometimes when the tubing is hanging free kids and cats think it is ok to play with it like a string, and I don’t realize until I feel a tug on the part connected to me. Ouch, people.
  9. Insurance companies. Enough said.

And the last one is….. drum rollplease….

10.  Media Portrayal of Diabetes. Some medias get it right but most of the time no one distinguishes what type is being discussed (usually type 2) so all    the normal people remain uninformed and see all diabetes as fixable and preventable. “Can’t you just exercise and you’ll be better?” No! I have type 1, buttface! Get the facts. Then I have to go into the whole immune system thing and how my body just decided to turn on itself and the cells that fight off sickness in my body saw my pancreas cells as bad (even though they are good, very good) and visciously ripped their throats out. And then the people’s eyes glaze over and they stop listening and just nod.

“Yeah, yeah my (insert uncle/grandpa/dad) was just diagnosed, so I already know this.”  -random person

“Were you even listening to anything I said?” – me

“Uh…” – random person.

Just break the wrist, and walk away.

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Lions, Tigers, and Bears. Oh my.

Every year I have to go see a medical eye doctor, and every year I leave the office feeling as if I was turned into a vampire.

“Why is this?” You say.

Well, let me tell you. Eyes are an important part of the diabetes. I need to have my eyes dilated yearly so the doctor can look for signs of diabetic retinopathy. I fear this. This could make me go blind eventually. The whole point of going to the doctor yearly is to catch this early enough so I could have surgery and fix it, that is if I ever get it, which I probably will, that seems to be how my luck is rolling these days. The dialation is the worst part of the exam, it’s evil and the cause of my vampiredness. Have any of you ever had this done? If you have, you would understand how impaired your vision becomes under it’s wrath and how wide your pupils get…not to mention how sensitive to the light you become.

I went to the doctor today and I thought I was doing ok with the dialation…until I walked out the door and into the sun…

“Ahhh!! The light!!! It burns!!!”

I bust out of there saying this as I hold an arm up to my head in hopes of blocking out the sun. The doctor’s office is located in a busy area of town and there were many people out and about. I’m sure I looked like a stumbling freakazoid to passerbys. I am posting the picture below not to be a creepy person, but to show you how demonic my eyes became. You can barely see the color of my eyes the pupils are so dilated! Ahh!!! The light!!!

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The above story is me trying to find the humor in a crappy appointment. While there were no signs of diabetes retinopathy, the doctor did see pannus on the limbus in both eyes. I don’t even know what that means. Sounds like spaceman talk. “Buckle up, ladies and gents. It’s going to be a bumpy ride. There is some pannus in the limbus.”

I guess it has something to do with blood vessels and my corneas. The doctor was useless in my questions. He referred me to a specialist.

“Doctor Ditz, does this have anything to do with the diabetes?” I say.

He replies with a ditzy puppy look to him “Good question! You should ask the doctor that at your appointment!”

“Uhh…what the heck are you?!? A homeless man they picked up off the streets!? You are a medical eye doctor for crying out loud! You are supposed to know this stuff! That is why I go to a medical eye doctor and not a normal one.”

I didn’t say that, but I thought it. I mean seriously. I sat a room for 20-30 min waiting for my eyes to dilate, doctor comes in for literally 5 min to examine my eyes. In and out, leaving me with a million questions. He walks me out to the front desk and tells the nurse who is to make my appointment with the specialist that there is no hurry to get me in right away, but “it should be done in the next two weeks.” Ummm…sounds like a hurry to me!

So, that was a bummer. I think it is something that could be easily fixed. I guess I’ll find out in two weeks. I’ll be honest here I’m getting sick of all this stuff coming about this year…well, basically just the lump, and now this (which may have nothing to do with the diabetes). It’s frustrating, but we all have our crosses to bear.

Snappin

Missed the last two days… Sat was supposed to be snapshot day and today is supposed to be your diabetic hero.

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I only took one photo and it was of my bloody finger. That prick hurt and kept bleeding… Always an awesome time. Blood sugar was good though. 99. That’s something, at least.

My diabetic hero… Don’t have one so I’ll have to go with myself… After all we really only have ourselves to rely on. I’m still alive, and so far no serious consequences. Just me and my lovely diseased pancreas kickin’ along.

Know or Go

Diabetes Blog Week Day 5 Prompt:

“What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”.  Let’s do a little advocating and post what we wish people knew about diabetes.  Have more than one thing you wish people knew?  Go ahead and tell us everything.

Umm…Grey’s Anatomy is on tonight, so instead of writing something I’m going to post my three favorite diabetic youtube videos. I’m busting out the ol’ bunny ears (antenna) to watch Grey’s tonight. I need to watch it in real time otherwise some facebook yahoo is going to put a status update about it and spoil it. As long as I sit in a certain spot and stay very very still I think I’ll be able to watch it tonight, that and the cats are not allowed to move either. I don’t have cable if anyone is wondering.

 

Love this one…I think most have heard some variation of this.

 

Love this guy! He got everything quite accurately!

 

I found these kids absolutely hilarious. I laughed like a loon at some parts. I don’t know if it would be entertaining to non-diabetics or not, but to all you Type 1’s with a pump, this is pretty funny.

 

 

Grey’s is starting. Peace out my reader peeps!

Take Me to Your Leader

Day 4 Prompt for Diabetes Blog Week

“Tell us what your Fantasy Diabetes Device would be?  Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc.  The sky is the limit – what would you love to see?”

I don’t really have a “Fantasy Diabetes Device,” but more of a “Fantasy Improvement to an Existing Device.” I have an iPhone. I love my iPhone. It basically contains my whole life in it’s tiny body. Well…not my whole life, but it is quite a contraption that I rely on to wake me up in the morning, give me directions to the shoe store, keep track of my appointments, keep track of my crazy friends’ phone and address info; It is my camera, a means for me to video chat with my family who don’t live near by. Basically a million things wrapped up in one small rectangular gadget. Why not have it check my blood sugars too? I’m thinking a continuous blood sugar checker  for every time I touch it. No prick or actual blood, just my fingertips scrolling around in my normal activities. If I’m low or high it would let me know by screaming obscenities at me until I fix it one way or the other. “Hey! You! Buttface! Go eat something before I punch you in the face!” or something like “Hello to anyone near Emily’s phone. She’s higher than a kite…she needs more drugs. She has problems. Please help.”

Realistically this would never happen. To test my blood sugar it would need… shock… my blood. The phone would have to have razor blades on it that cut me as a I scroll. Then I would bleed all over the screen and it would end up being, well, it would be a bloody mess. This is fantasy though, so no need to get all real up in here.

My other addition to this invention would be an app where I would take a picture of whatever I’m eating and it would automatically calculate the exact carbs in it. Oh the joy that would be! My boluses that I give whenever I eat (extra doses of insulin to account for food ingested) are based on how many carbs I eat and it gets frustrating trying to always figure out how many something has. Do you know how many carbs are in a banana?  a bowl of cereal? milk? chicken nuggets? a restaurant hamburger bun? grapes? broccoli? carrots? your moms house? the stuffed pasta shell you are about to eat? blah blah blah. It is too much, my brain is exploding.

While those were fantasy, there are awesome inventions that are coming out to the market. Through some blogging and checking out of other people’s diabetes business I discovered that there is actually a blood testing machine that connects to your iPhone and when you test your blood it downloads to your phone and charts, graphs, and beautifully organizes everything so you could easily email it to your doctor or whatever else you may need to do with it. Pretty cool. The Apple Store and Walgreen’s carry it.

I wonder if insurance covers it? I dread having to call to ask. Such is the life of the diabetic.

Me? Bad? Why, I never!

Day 3 Prompt – “Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!”

Well, geesh, I could go on and on about this one. I have been bad with everything, as I have previously mentioned in my posts…that was one of the reasons I started blogging last month, to have accountability. That and I wanted to inform people of my disease…as type 1..NOT type 2. I think everyone needs to be educated on this matter. Another post for another day, perhaps.

If I had to pick one thing I guess it would be being forgetful of bolusing, giving extra insulin to account for food entering my body. I usually remember 30 min to 60 min after eating….ok ok sometimes even longer than that.  However, since I have been checking my blood sugars regularly I do not forget my bolus as often. Checking my blood sugar is the key to everything. The key to the world. The universe! The key to all that is good and wonderful!  I can use it to defeat all manners of evil. Watch out, world! I mean universe!

Is that blood?

Day two prompt :

“Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”.  But today it’s time to give ourselves some much deserved credit.  Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well”

Hmm…One diabetes thing I do spectacularly? I’m going to have to go with deposit my blood in random places. Clothes, tables, face, cat, laptop, wall, car, etc. etc.  I check my blood sugar 4 – 6 times a day and my fingertips can be quite the blood gushers at times. I frequently wipe the blood off my fingertip, move on with my life and forget that sometimes my finger wants to keep bleeding. At those times I have to ask my fingers “Why are you being so rude today? Stop the madness.” Geez louise.

When I have a persistent bleeder whatever I come into contact with is going to get a little DNA treat from me… I guess some might find that gross…I don’t. It has become natural for me to look at my palm and see some dried blood hanging out. A few times I have squeezed my fingertip after a prick and blood literally squirted out like a fountain. Those are some interestingly disgusting yet fascinating times.

My blog response for Day 2 is probably not what was intended, but I can’t think of anything great I do in terms of the Diabetes. I woke up with a 333 blood sugar and now I just feel like whatever. This day sucks. Well, the day itself doesn’t suck, but the diabetes part of it really blows.

Diabetics Unite

Find A Friend. That is the topic of the first day of 3rd Annual Diabetes Blog Week. I am to “find a friend” and post a link to their blog site about diabetes.  I’ll be honest this one kind of made me nervous. I wasn’t sure how to go about the process. What is the protocol? Do I need to actively befriend someone before posting about their blog? Do I just post a link and not inform them I’m doing it? If I do this will I be murdered by ghost babies in my sleep? Those of you who know me know I like to think a project through before doing anything, but I guess I’ll just wing this one….if you can consider pondering it throughout the day “winging it.”

I was talking to a lady at work friend whom I work with (she does not want me to refer to her as “a lady I work with”)  today about this blog post, and she told me something along the lines of mentioning how I’m a crazy cat lady and how my only friends are cats and then people will feel sorry for me. HAHA! That’s one way to go about it..untrue..but I could. To those of you who don’t know me I do have friends, great ones, in fact, human ones,  but they like to tease me about  my crazy cat like tendencies. It’s no secret I am a fan of the non-human fur creatures. Although, two cats does not equal crazy. Maybe three, but that is a line I do not intend to cross…and eventually I will get a dog. A dog is a buffer, so I could have five cats, but as long as I have a buffer dog I could just be “crazy animal hoarder.”

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I had to post a pic…they are just so cute. This does NOT make me a crazy cat lady… does it?

I digress…back to the point of this post.

I will be recommending the blog Pancreas on Strike by Jessica. There were many diabetes blogs to read, and I didn’t read them all, but Jessica’s blog title caught my eye. She also used the word “schmancy” in one of her posts. I liked that.

There are many great blogs out there that I have been reading and it is nice to know I’m not alone out there. I’m starting to realize there is a big community in the land of diabetic blogging and I am just now stumbling along checking things out. It is an interesting world out there. From some of the blogs I read I think I might need to start tweeting… really

get in the social media world. Soak it up. Be a part of the 21 st century. Go to my FB and mention my tweets then people can go to my twitter page and connect to my blog then they can go to my blog and take a ride on my deceased pancreas. Connect to my MySpace page…wait. That’s not cool anymore.

After this post I am not connecting the rest of my posts this week to facebook, so if you are one of my number 1 followers (Luke C., that’s for you. You did lay claim to that title. It is your burden to bear. Good luck. I’m going to need you to enter the downtown parade with a banner of my blog now. ) Anyway, you will have to check in on a daily basis. Or you could officially “follow me” so you can get my updates. Never know what kind of crazy tomfoolery I’m going to dive into.

 

 

A Culinary Masterpiece Gone to Waste

The day had been a long one fraught with one constant headache after another. She couldn’t wait to go home and fire up the grill that was covered in yard waste and spider webs from it’s lack of use. The menu plan is chicken breast with a slab of bacon wrapped around it marinated in a most delicious “Pampered Chef Teriyaki Sauce with Honey” served with a sweet potato and  Farmer’s Market asparagus.

After 10 minutes of cleaning the grill up and another 10 trying to get the blasted thing started, the chicken is on the grill and cooking away along with the potato. The asparagus is added later enclosed in her new Pampered Chef BBQ basket, an interesting invention that encloses food in it and can be flipped over easily using the handle.

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She places the chicken on a plate and uses her other ovenmitted hand to flip over the asparagus in the BBQ basket.

“Uh oh”

She did not take into consideration the fact the the vegetables were thin enough to slip though the side of the basket in mid flip. They are mostly now laying at her feet amongst grass, dirt, and sweet gum balls. The few that remain in the basket  are thrown back on the grill. She bends over, still holding her precious chicken on the plate while she uses tongs to pick up the dirt ridden vegetables. Immersed in her task, she forgets the hand holding the chicken, and…

“Son of a!”

The chicken joins the asparagus smack dab in the dirt. Thinking about her grilling failure, she turns back to the grill and, yep, the remaining asparagus is burnt to a crisp, completely blackened charred grossness. The only thing that made it out of the wreckage was a single sweet potato.

“A culinary masterpiece gone to waste.” – Chef from Beauty and the Beast

That’s my story from yesterday. Couldn’t help but laugh as the whole thing was happening. If any neighbors were watching I’m sure they think I’m a complete loon. I do frequently laugh whether I’m with people or by myself. There is much to laugh at if you look for it. I think.

This was one of my attempts to eat healthier and not opt for the easiest solution, which is artery clogging fast food. A shall try again another day and hope I have learned my lesson on grilling techniques!

Diabetes Blog Week….who knew?

I was digging around the internet today with my mouse shaped shovel checking some fellow Type 1 diabetic blogs and found out there is a thing called “Diabetes Blog Week” and it starts on Monday. Woo hoo! I signed up and am excited to start. I needed some writing inspiration so hopefully this will do it. I am also hoping to add a guest post from my eldest brother, no telling what kind of shenanigans will come from that. Hopefully, it will at least be partially about me being diabetic. We shall see. Stay tuned. Below is a list of the Diabetes Blog Week  topics. I hope my insistent talking (typing) of my disease doesn’t bore off the non-diabetics. I swear I’ll try to make it some sort of entertaining. If I have to dance a jig and record it, I will. I am part Irish, you know.  1/32 native American too. Don’t be jealous. You can’t all be as cool as me. 😉

5/14 – Find A Friend
5/15 – One Great Thing
5/16 – One Thing to Improve
5/17 – Fantasy Diabetes Device
5/18 – What They Should Know
5/19 – Saturday Snapshots
5/20 – Diabetes Hero
Wildcard – Something Good to Eat
Wildcard – Diabetes Creativity